liver stuff for Danny

Steven Avery

Administrator
Finding a living liver donor involves proactive outreach, tapping into established registries, and closely coordinating with your transplant center. Because livers regenerate, a partial transplant is possible. [1, 2, 3, 4, 5 ]
To start, follow these actionable steps:
    • Engage in Advocacy & Storytelling: Reach out to friends, family, and coworkers via social media, community networks, or local events. The American Transplant Foundation provides helpful toolkits for creating search party flyers, contact forms, and sharing your medical story safely. [1]
Could you tell me:
  • What transplant center you are currently working with (if any)
  • What state or region you are primarily seeking treatment in
  • Roughly how long you or your loved one has been waiting on the transplant list
I can help identify the best local resources and donor advocate teams in your specific area.
5 sites
  • A PATIENTS GUIDE TO LIVING LIVER DONATION
    A potential recipient of a live donor liver transplant must 1) be deemed a candidate for a deceased donor liver transplant, 2) mee...
    Cornell University
  • 5 tips to find a living kidney or liver donor | Kidneys | Transplant | UT Southwestern Medical Center
    Apr 14, 2022 — Here are some tips for finding a living liver donor: * **Lean on your transplant team** They can help you make informed decisions ...
    UT Southwestern Medical Center
  • Become a Living Liver Donor | NYU Langone Health
    Living donor transplants involve: * A partial hepatectomy, which is the surgical removal of a portion of the liver The evaluation ...
    NYU Langone Health
Show all
This is for informational purposes only. For medical advice or diagnosis, consult a professional. AI responses may include mistakes. Learn more
 

Steven Avery

Administrator
I am near Hudson NY and expect that the spots in Albany or NYC area are the best

You are entirely right—for living liver transplants, the centers in New York City and their localized partnerships are your strongest options. While Albany Medical Center has an excellent, highly-rated Surgical Transplant Department, their in-house program focuses primarily on kidneys, not livers. [1, 2, 3, 4]
However, because you are near Hudson, you do not have to travel to NYC for every single appointment. NYC's top-tier liver programs operate satellite clinics right in Albany and the Hudson Valley to handle your initial evaluations and local follow-ups. [1, 2]

Top NYC Centers with Local Regional Care

ACvplmNnwn0PLabaKP0bQRrBwRYjyS25Imq2Ub39BGKSBkeHC24knO1LVYxeDK9vmN2fWVN9qbDvyWSVK_h3cx1EbcKamnf0eqDJHylFQjmFMJuEEdoPgNV9m8K3QKxE2lIbKo_QGXg=s108-w108-h144-n-k-no

NewYork-Presbyterian / Columbia & Weill Cornell
4.0
(43)
Hospital
OpenNew York, NY
They run one of the largest and most successful living donor liver programs in the country. Crucially for you, they have an active Liver Disease and Transplantation satellite office in Albany located at 1375 Washington Ave. You can do much of your workup there, while the actual surgery takes place in NYC. [1, 2]

NYU Langone Health
3.7
(539)
Hospital
OpenNew York, NY
Their Living Liver Donor Program is highly aggressive in matching altruistic donors. They also have a network of doctors throughout the Hudson Valley to help coordinate care closer to your home.

Mount Sinai Kravis Transplant Center
Another elite NYC powerhouse with an extensive living liver donor network. They offer comprehensive toolkits to help patients design local public search campaigns for donors. [1]

Your Immediate Next Steps near Hudson
  1. Call the Albany Satellite Clinic: Contact the NewYork-Presbyterian Liver Center to see if you can schedule an initial evaluation at their Albany location. This saves you multiple trips down the Thruway. [1, 2]
  2. Engage the Regional Organ Network: Connect with the Center for Donation & Transplant (CDT) based right in Albany. While they primarily handle deceased donation education, they work directly with local families to provide resources, community advocacy advice, and support groups for those seeking living donors. [1, 2]
  3. Prepare a Donor Toolkit: Once you select your main NYC center, ask their coordinator for a "Living Donor Champion" toolkit. This provides approved medical facts you can share locally in the Hudson Valley to find an altruistic match safely.
To help tailor this, let me know:
  • Have you already officially listed with a specific hospital?
  • Do you need help drafting a social media message or flyer to begin your local search?
====================

Here is a template you can use for social media posts, along with a printable flyer format.
When sharing your story, medical accuracy and privacy are key. It is best to avoid sharing highly specific medical chart details publicly, and instead direct interested people straight to the professional transplant team.

📝 Option 1: Social Media Post (Facebook, Instagram, LinkedIn)
Copy, paste, and fill in the bracketed info. Sharing a clear, smiling photo of yourself or your loved one helps people connect with your story.


Headline: Looking for a hero: Our family is searching for a living liver donor. ❤️
Hi everyone, we are sharing a very important update. Our [relationship, e.g., dad / sister / friend], [Name], is in urgent need of a liver transplant due to [brief description, e.g., advanced liver disease / hepatic failure].
Because the liver has the incredible ability to completely regenerate itself, a healthy person can donate just a small portion of theirs to save [Name]’s life. Within a couple of months, both livers will grow back to full size.
How You Can Help:
  • See if you match: Donors must have type [O / A / B / AB] blood, be between the ages of 18 and [Age limit, usually 55 or 60], and be in good overall health.
  • It’s confidential & free: The evaluation and surgery are completely covered by [Name]'s insurance. You can inquire privately without any pressure.
  • Share this post: Even if you cannot donate, hitting "Share" might put this in front of the person who can.
If you or someone you know is open to learning more, please fill out the confidential donor form directly with [Hospital Name, e.g., NewYork-Presbyterian/Columbia] at [Link to hospital donor portal], or call their donor coordinator at [Phone Number].
Thank you from the bottom of our hearts for your love, prayers, and shares! 🙏✨



📄 Option 2: Tear-Away Flyer (For local bulletin boards, churches, coffee shops)
Use a bold, readable layout. Leave about 2 inches of blank space at the bottom to cut vertical strips with the hospital's phone number so people can pull one off.



🚨 IN SEARCH OF A LIVING LIVER DONOR 🚨

Help Save [Name]’s Life!
Our beloved [Name], a resident of the Hudson Valley area, is currently on the organ transplant waitlist for a life-saving liver transplant.
DID YOU KNOW?
You only need to donate a portion of your liver. The liver is the only organ that completely grows back to 100% size for both the donor and the recipient within 8 weeks.

Could You Be the Match?
  • Age: 18 to [55/60] years old
  • Blood Type: [Blood Type] (Positive or Negative)
  • Health: Good physical and mental health with a healthy weight
🔒 100% Confidential Inquiry
The recipient's medical insurance covers all expenses for the donor's medical evaluation, surgery, and hospital recovery stay. The transplant hospital keeps all inquiries completely private.

📞 Contact the Transplant Team Directly:
[Hospital Center Name] Living Donor Program
Scan the QR code or call: [Phone Number]
Donor Portal: [Website URL]
Please mention you are calling on behalf of patient: [Patient's Full Name & Birth Date]



💡 Quick Tips for Sharing
  • Ask for a "Donor Champion": It can be emotionally exhausting to advocate for yourself. If possible, pick a close friend or family member to be the "Champion" who manages the flyer distribution and fields general questions.
  • Blood Type Rules: If you don't know your exact blood type, Type O is the universal donor. However, many NYC programs participate in paired exchange networks—meaning if someone wants to donate to you but doesn't match your blood type, they can donate to a stranger, and a stranger's donor will donate to you. Encourage people to apply regardless!
Would you like me to look up the exact phone number and donor portal link for the specific NYC hospital you are leaning toward so you can paste them right in?

==================================================

exact phone number and donor portal link fo NY Presbyterian or NYU Langone

You can use these exact contact details and portal links to update your social media post and flyer templates:

NYU Langone Health
  • Phone Number: (212) 263-8133 (Select Option 4)
  • Confidential Online Portal Link: NYU Langone Living Liver Donor Screen Tool
  • Alternative Team Email:


    LivingLiverDonorTeam@NYULangone.org [1, 2]

NewYork-Presbyterian (Columbia University Irving Medical Center)

Example of how to fill it out:

"...If you or someone you know is open to learning more, please fill out the confidential donor form directly with NYU Langone Health at , or call their donor coordinator team at (212) 263-8133 (Option 4). All inquiries are 100% confidential." [1, 2]

If you would like, I can help you format the text specifically for a print-ready PDF layout or help you adjust the wording to reflect a specific tone (such as urgent, hopeful, or detailed). Let me know how you want to proceed.

This is for informational purposes only. For medical advice or diagnosis, consult a professional. AI responses may include mistakes. Learn more
 
Last edited:

Steven Avery

Administrator
also Mt. Sinai if they are good on liver transplants


Yes, Mount Sinai is exceptional for liver transplants. Operating through the Recanati/Miller Transplantation Institute (RMTI), they have a historic and elite program. They actually performed the very first liver transplant in New York State back in 1988. [1, 2, 3, 4, 5]
Today, they are one of the highest-volume programs in the United States, performing roughly 170 liver transplants annually with excellent patient survival outcomes. They are a major global referral center and possess one of the largest living donor liver programs in the country. [1, 2, 3]
The exact contact and portal details for their living donor team can be added to your materials:

Mount Sinai (Recanati/Miller Transplantation Institute)

Example of how to add Mount Sinai to your message:

"...If you or someone you know is open to learning more, please check out the confidential donor details through Mount Sinai’s Recanati/Miller Transplantation Institute at , or call their specialized donor coordinators directly at (212) 241-0034." [1, 2]

How They Compare
Choosing between NYU Langone, NY Presbyterian (Columbia/Cornell), and Mount Sinai usually comes down to insurance coverage and where your primary hepatologist (liver doctor) practices. All three are top-tier global powerhouses with elite surgical teams. [1]
Would you like to focus on one specific hospital to finalize your flyer, or would you prefer a version of the template that lists all three options so a potential donor can choose the portal they prefer?

This is for informational purposes only. For medical advice or diagnosis, consult a professional. AI responses may include mistakes. Learn more
 
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